Seth and Swimming.

So last week Seth had 3 doctor appointment and they were not our favorites but we did get some answers. Tuesday we went to Banner and he had a VCUG done which is a voiding test where they put some liquid through a catheter and watched where it went. (meaning if it goes back up into the kidneys or stays in the ureters and out through the bladder) Seth's did not. His went straight back up to the kidneys. When he was born he had a grade 4 or the right side and a grade 5 on the left side. In February he had a minor surgery where they put deflux balls to stop the urine from going up to the kidneys. He has had one UTI since then but as of Tuesday that surgery really didn't help at all (Left side is still grade 5 and right side is a grade 3) we were just lucky to avoid them. So on Thursday we met with the urologist and they did an ultrasound on his kidneys and ureters and then came and talked with us. From the results of the VCUG and the ultrasound they decided to go ahead and do a surgery to correct it. It ends up being a 99% success rate which we are happy with. I really do not want him to have to have surgery but if it mean no more UTI's and antibiotics for this reason I am okay with it. So on October 4th we have to be at Phoenix Children's Hospital at 6am and the surgery will probably start at 7:30am if they are on time. The surgery will last anywhere from 3-4 hours and they will but below his belly button and open up his bladder. They will then reconstruct/reroute his ureters. If they have to cut too much of the ureters then they will have to insert a stint which will most likely happen and that they will leave in for 6-8 weeks and then do an outpatient surgery to take it out. After the surgery he will be in the hospital for 2 days minimum depending on how he does. He will have a lot of bladder spasms after so they will give him an epidural to help with the pain and stuff and then start pain meds. He is one tough cookie so I think he will do great. In my head because he is not walking yet maybe he wont have a ton of pain like the kiddos who want to get up and move at one but yet on the other had you hear that you always heal faster if you get up and walk around so I am not quite sure how it will go but he will do great like he always does. Here are some pictures from the VCUG.

I think they need a new color for the boys gowns! Just hanging out before the catheter.



So of course my husband would love putting his vest on and acting like a robot. I could not be in the room during the test so I just took some pictures before.






So Friday we met with his Neurologist about his seizures. The doctor decided to try a drug keppra (that he was on before the spasms) and we are going to try it for 2 weeks and if it doesn't work then we have one other drug Depakote to try for two weeks and then if that does not work we will go with vigabatrin (the one that can cause vision loss) So far we have seen a big decrease in is spasms. He is still having them but it is a lot less and we still have next week when we increase the dose so we are praying that this actually helps so that he can just stay on this drug until they are gone. I love this drug because of the fact that the side effects are so little and it is such a safe drug.

While we had the two urologist appointments Sydney went with the MacCallum kiddos to grandma Patti's house and go to go swimming. I can not tell you how much this little girl LOVES to swim but she would swim all day if you let her. Here are some pictures I stole off of Lisa's facebook of her and her friends having a great time.
Topher, Sydney, Lorelai, and Drew

Ezra, Topher, Sydney, Lorelai, and Drew

Sydney Flying! I so LOVE it!

Okay so I have to do some explaining here. Lisa said that she wanted to get a picture with all of the kids jumping into the pool and Sydney just didn't get it. So all of the kids are in the air and Sydney is just watching.

And watching again :)

Lisa got a great idea to put Sydney with Drew so that she could tug her when it was time to jump.

FINALLY!!! So freakin cute.