When I was in Chicago the parts to Seth's stander that we have had since October finally arrived. When he had his PT Ben hooked everything up and gave me a run down on how to get him in and out the easiest and how to adjust everything. Seth was not a fan of it the first few times in it and I had to entertain him with his favorite toy.
When I went in to get him out of his bed on his birthday. He was so happy!
On our way to the pool.
In the pool and the kids had so much fun.
The swing that grandpa hung up for Seth
Here he is inside it and he LOVES it!
On Thursday June 28th we met with the dietitian about the ketogenic diet and getting him started. We had to get so much blood work before the appointment and he also need two urine samples one for a culture and one that checks how his metabolism works I forgot to get that one so they can not start the diet until they get the results from that test. Anyways this diet is crazy. For this one reason I am glad that Seth still drinks formula and is tube fed because doing this diet for someone like sydney would be CRAZY (you have to make sure there is only 2g of carbs in the food daily and NO SUGAR-if there is they could cause seizures if the diet was working and kept the seizures away. Also you have to weigh the food and the kids have to eat everything off their plate) Anyways for Seth he will be given ketocal which will take the place of his pediasure and we are praying he will take it from the bottle. If we want to do any food or food play we have to buy a scale and they will provide us with some recipes and a certain heavy cream that we mix with foods so he can eat that for like feeding therapy and stuff. We got a 16 page list of the products that he can use. If it is not on the list we can not use it. Here are a few of the categories that we have to make sure we have carb free and sugar free. There are more but they do not pertain to Seth right now like deodorant.
Baby Rash Cream
This is his "what are you making me do" kind of face.